Comments on: Making The Invisible Visible http://notdoneliving.net/writing/invisible-visible Sun, 29 Jan 2012 01:11:24 +0000 hourly 1 http://wordpress.org/?v=3.1.2 By: Sherri http://notdoneliving.net/writing/invisible-visible/comment-page-1#comment-8519 Sherri Fri, 04 Mar 2011 03:52:17 +0000 http://notdoneliving.net/?p=98#comment-8519 MY DISABILITY? My "disability" usually isn't considered to be a disability at all because it so common. But to what "degree" is my disability? Good question! I have severe scoliosis. Severe, being the most important, is curviture of the spine that is more than an 45 degree angle. Me? I have two curves (shaped like an S). The top curve is a 45 degree and the bottom is a 67 degree. I've lived with this deformaty all of my life, untreated. Now, at the age of 48, I cannot do the "every day, normal activities" that most people do. I live with CHRONIC PAIN every single day of my life...debilitating pain. People don't understand this because when they look at me they don't see me with x-ray eyes... i wish they could. I can not work a full time job. I can barely get by at home when I have a "day off". Since I don't have a full time job, I don't have insurance. I am on Medicaid but am unable to get any assistance on SSI because when doctors look at ME they don't see anything wrong. If they see an x-ray they are suprised, shocked or in disbelief. Because of being on Medicaid, there has never been an MRI done on my entire back....only the bottom 4 vertebre. I guess that's all they can afford to do. There are surgeries that can attempt to help my condition but no doctors to "take it up the tail pipe" by accepting Medicaid. Friends and family look at me with furrowed brows when they ask how I am. Like something might have changed or gotten better. Alot of them think I'm lazy or just depressed. I AM DEPRESSED! But not "clinically". I'm depressed because I can't get through one day without excrutiating, debilitating PAIN! I'm sick of pain. I'm sick with pain. I can NOT move WITHOUT pain. IT HURTS TO BREATH! Where is my life going from here? How long can live like this? Will anyone ever really know what I'm going through? Suprisingly enough, that is what's most important to me. MY DISABILITY?
My “disability” usually isn’t considered to be a disability at all because it so common. But to what “degree” is my disability? Good question! I have severe scoliosis. Severe, being the most important, is curviture of the spine that is more than an 45 degree angle. Me? I have two curves (shaped like an S). The top curve is a 45 degree and the bottom is a 67 degree. I’ve lived with this deformaty all of my life, untreated. Now, at the age of 48, I cannot do the “every day, normal activities” that most people do. I live with CHRONIC PAIN every single day of my life…debilitating pain. People don’t understand this because when they look at me they don’t see me with x-ray eyes… i wish they could. I can not work a full time job. I can barely get by at home when I have a “day off”. Since I don’t have a full time job, I don’t have insurance. I am on Medicaid but am unable to get any assistance on SSI because when doctors look at ME they don’t see anything wrong. If they see an x-ray they are suprised, shocked or in disbelief. Because of being on Medicaid, there has never been an MRI done on my entire back….only the bottom 4 vertebre. I guess that’s all they can afford to do. There are surgeries that can attempt to help my condition but no doctors to “take it up the tail pipe” by accepting Medicaid.
Friends and family look at me with furrowed brows when they ask how I am. Like something might have changed or gotten better. Alot of them think I’m lazy or just depressed. I AM DEPRESSED! But not “clinically”. I’m depressed because I can’t get through one day without excrutiating, debilitating PAIN! I’m sick of pain. I’m sick with pain. I can NOT move WITHOUT pain. IT HURTS TO BREATH! Where is my life going from here? How long can live like this? Will anyone ever really know what I’m going through? Suprisingly enough, that is what’s most important to me.

]]> By: adely ogburn http://notdoneliving.net/writing/invisible-visible/comment-page-1#comment-1425 adely ogburn Wed, 08 Sep 2010 04:18:19 +0000 http://notdoneliving.net/?p=98#comment-1425 Hi, ive been suffering with chronic pain from fibro and having a hard time living with it and with that depression comes along and there goes more pain and will like some advice Hi, ive been suffering with chronic pain from fibro and having a hard time living with it and with that depression comes along and there goes more pain

and will like some advice

]]>