Comments on: An Open Letter To Those Without Invisible Disability Or Chronic Illness …

By: pissed « surrenderXXcontrol

pissed « surrenderXXcontrol — Tue, 23 Feb 2010 04:18:49 +0000

[...] it’s different to be understanding, and to just completely treat someone differently. when someone has the flu, you dont ask them to do manual labor. tha’ts being understanding. but hazing a kid because she’s always sick… that’s not ok… http://notdoneliving.net/openletter/id [...]

By: Joey

Joey — Sun, 07 Feb 2010 02:24:07 +0000

Thank you. I am a disabled American Veteran. Even though I have h/c tags on my car, I get odd looks when I can walk away from my car. My h/c is not something who does not know me would see.

Also being a woman and on the young side, I get really odd looks. Like, why are you driving your Grand Dad’s car?

By: Jackie

Jackie — Mon, 14 Dec 2009 04:57:37 +0000

Thank you so muck for writing such a perfect letter! I have Polycythemia Vera and one moment I feel almost perfect and the next moment I want to collapse. People always tell me how good that I look and I do look pretty healthy when I look in the mirror. I wish they can feel how I feel for just a day and experience the rollercoaster that I ride!

By: not done living « lunathink

not done living « lunathink — Thu, 10 Dec 2009 04:19:53 +0000

[...] http://notdoneliving.net/openletter/id [...]

By: Patricia

Patricia — Fri, 04 Dec 2009 19:26:40 +0000

Hi, I have Syringomyelia. You can’t see what’s wrong with me by looking at me, or even hanging out with me. I am a mother os 3 and I have to take care of them but I have days that I hurt and I get tingling/numbness down my right side of my body. People just think that I make up my headaches cause one day I’m fine the next I can’t get out of bed. I have been called lazy many times from family and friends. I don’t think I’m a lazy person I think they just don’t understand my condition. I don’t even understand it fully.

By: AuBricker

AuBricker — Tue, 27 Oct 2009 16:52:50 +0000

I too suffer from an invisible disability and can not work. Sometimes, I am trapped at home for extended periods of time. Daily, I must take extraordinary quantities of medication.

My friends must think me odd, because I seldom go out, and when I do, I always appear healthy and happy.

I experience many of the same reactions you do.

By: Steven Boyd

Steven Boyd — Sat, 24 Oct 2009 20:41:09 +0000

Please understand that living with this illness/disability and being confined most of the time, I feel and have become very isolated. I miss my friends and knowing about as well as being a part of their lives. I feel guilty at times because I am unable to visit and have lost a lot of friends because of this illness/disability. I cherish your visit, phone call or email more than you know even if it goes unanswered for several days. Please understand that I still need you in my life.

By: Steven Boyd

Steven Boyd — Sun, 18 Oct 2009 19:01:36 +0000

Thank you for eloquently sharing what I have been trying to express for years. Speaking for myself, I am not seeking pity and/or sympathy….just an understanding of what I must endure. Nobody will ever be able to live or understand the misery in my life, but prayerfully this will allow my friends to understand how I live with and combat it.

By: [Life] An Open Letter To Those Without Invisible Disability Or Chronic Illness … « Urbanimal – the art of Emma-Jayne Saanen

Sat, 03 Oct 2009 10:53:03 +0000

[...] in the hopes that people will try to understand how I am feeling. The original post can be found here at Not Done [...]

By: Shannon Farlouis

Shannon Farlouis — Thu, 24 Sep 2009 23:21:42 +0000

I understand what you are saying about invisable disability.
I am sorry that I cannot recommend a cure. I will offer comfort for your soul. God is the key to everything in life.

Psalm 34:19 The righteous person faces many troubles, but the Lord comes to the rescue each time.

Only you know what you are facing and God does to even in your darkest hours.

This letter stands out and will catch the eye of many. It will be hard to forget. You have painted a very vivid picture for many who do not understand. There was no better way to do it other than writing about how you felt. I will keep you in my prayers and may God bless you!!