Comments on: An Open Letter To Those Without Invisible Disability Or Chronic Illness …

By: Anne Medlin

Anne Medlin — Sun, 29 Jan 2012 01:11:24 +0000

yes sue this is true also,but in the end its us who put up with pain of trying to walk around shopping etc,pretending we are ok,its so odd how we feel embarrassed,maaybe we should just stop worrying about what otherss think,ive done that so long its another illness in itself,as when im not in my hometown i will relent and be pushed around to go shopping,yet home i suffer to walk,our pride ends up giving us much more pain,but we feel the stigma,even if ppl arent thinkin it we still think everyone does..because its Invisable,and we hide it so well to keep friends and ppl in our life,fearing they will get sick of us moaning or making anyone have to run after us.a true friend wont make us feel like thaat,stuff the whole rest of the world sue,its our life,its our truth and we must stop being ashamed.sent with much luv(and pain)to all the hiding super heroes here!!

By: Sue

Sue — Thu, 26 Jan 2012 21:20:42 +0000

“I’d almost rather have to be in a wheelchair. At least then people would believe that something is actually physically wrong with me and that I am not making it up”.

I can see your reasoning, but when you use a wheelchair they still don’t believe you. They think you’ve given up, so in fact, you’re subjected to a lot of prejudice and discrimination.

By: GeorgieLotte

GeorgieLotte — Fri, 06 Jan 2012 23:34:03 +0000

I have fibromyalgia and cfs I was and am absolutely made up to read this and have gladly shared the link on Twitter as I feel a lot of Ppl would also benefit from reading or sharing this with others. Thank you for wording it so perfectly

By: John McCloud

John McCloud — Sun, 25 Dec 2011 23:17:51 +0000

Hi All I think that this letter at the start of this article is very good. I have many unseen illnesses, problems and complications in my body. I would prefer not to mention them as people may think of me differently. I could do without all the hurtful things that people say and do when they think your okay to look at. I look normal by todays standards. I can walk, talk, eat, drink and do many other things in my life but it will be painfully done as Im always suffering. I have had people say you dont look disabled to me and you dont look as if your in pain and a whole lot of other things which I will not say at this time but Im sure you can imagine. I dont think I will make it to an old age and my life is bleak to say the least but I dont let it get me down. Please Im not looking for support or sympathy or pity. I just want those people who judge with their eyes to stop and ask themselves what would they feel if they had disabilities and an illness that was not able to be seen, how would they feel about there friends, family and strangers saying cruel things and making accusations. Please dont be a hypocrite, if you are in doubt and before you put us down I would rather you take the time to get to know me and ask me what is wrong with me as opposed to make an assumption and be a hypocrite like the rest of the people out there. We are people at the end of the day and we have a heart. I dont know when Im going to die but I know it could be soon and Im only 44. How would you like to have that hanging over you. Its not nice is it. Neither is your hurtful remarks and accusations. So next time you go to judge someone rather than be a hypocrite, judge and executioner, say noting and just leave us all alone. Life is hard for us all with our problems, disabilities and illnesses without your hurtful remarks. Have a heart. PLEASE…

By: Invisible Disability - Chronic Pain Illness

Invisible Disability - Chronic Pain Illness — Tue, 06 Dec 2011 17:09:53 +0000

[...] Open Letter To Those Without Invisible Disability Or Chronic Illness … by Ricky Buchanan is licensed under aCreative Commons Attribution-Noncommercial-Share Alike 2.5 Australia License. [...]

By: Justin Murdock

Justin Murdock — Mon, 05 Dec 2011 13:01:33 +0000

RIP Kay Dekker, 15/9/1959 – 7/7/2011.

Carried away by his medication, as he feared he might.

By: Someone Like Me « The Lupus Diaries

Someone Like Me « The Lupus Diaries — Tue, 22 Nov 2011 15:23:50 +0000

[...] http://notdoneliving.net/openletter/id [...]

By: Ann

Ann — Mon, 14 Nov 2011 13:43:00 +0000

This is so inspiring and Id love to mail this to EVERYONE I know! I actually just had one so called friends tell me I need to see a councilor! lol! As I shared my thoughts on the pain I’m going through that makes it hard to get out when I have the chance, but I can’t because I’m having a bad day/night and its very depressing sometimes… that was so rude & unacceptable, especially since this person knows all I go through.
Every one of us that suffer need to know who your true friends are Just when you think your right, you get that one comment, & all it takes is one… Like a councilor is going to solve my pain? been there, done that… so many times. Its like going back to P.T. when all they do is hurt you more. You can’t get better by a round of 4 weeks of Physical Therapy. If you have an inured neck that hurts every day, with fibromyalgia, by pulling, stretching, turning our neck, we go home in worse pain than we had before!!! It don’t get any better either! thank you my friend, Dolly, for sharing this with me I will ad to my others, its very iinspiring to pass on <3

By: Anonymous

Anonymous — Fri, 28 Oct 2011 22:52:38 +0000

Thank you for making me feel like a human being again. I do not have a label for what’s wrong with me. It’s a bunch of different things that the doctors don’t seem to think are connected. I cannot explain how much I appreciate hearing that I’m not alone.

By: Leah

Leah — Sun, 23 Oct 2011 06:01:14 +0000

I work a job, 40 hour weeks, two ten minute breaks a day, despite having gastroparesis. This means I have to make 3, 4 or 5 bathroom runs a day when I have attacks. Vomit up all the food, and do this for 10 minutes or so. Then go back and clock back in until I have to go again–and pray to any god who will listen to please not let any calls come in when I’m sick. I’ve already had pay docked due to the nausea/vomiting/etc, since I take more breaks than I’m allowed. I cannot afford to be on disability–I had been getting it for mental illness issues, $375 monthly, which is about what I get for one weekly paycheck. But I’m in too damn much pain…the pain in my midsection keeps me awake all night, many nights I get NO SLEEP and go in to work the next day. My fiance’ is sweet and understanding but most others are not, including the doctors who maintain it’s a “psychosomatic” issue. Or that I need counseling. Yeah, I need counseling–DEATH counseling. I’m not getting any damn help and I’m getting sicker, and soon I’ll need to start preparing for the end. If this is what it’s like to die, than I wish i’d never been born.