Open Letter To Those Without...
Arthritis Dos And Don’ts
DON’T assume because I look well that I feel well. Looks can be very
deceiving. Many days I look great, but I feel terrible.
DON’T tell me you know how I feel. No one knows how anyone else feels. Two people with the same disease may feel totally different. We all have varying thresholds of [...]
Open Brief Aan Diegenen Die Niet Chronisch Ziek Zijn
Thank you to Anjo for translating this for me!
CVS hebben betekent
veel veranderingen, waarvan er een hoop onzichtbaar zijn. De meeste mensen
begrijpen weinig of niets van CVS en de effecten, in tegenstelling tot AIDS
en kanker. Hetgene wat ze wel denken te weten, is vaak verkeerde informatie.
Om iedereen te informeren die het wil begrijpen…
…Hier zijn de [...]
An Open Letter To Those Without Invisible Disability Or Chronic Illness …
Having an invisible disability (ID) and/or invisible chronic illness (ICI) means that many things change. Just because you can’t see the changes doesn’t mean they aren’t real.
Most people don’t understand much about these disabilities/diseases and their effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who [...]
‘Open Letter’ Alternatives and Adaptions
My original ‘Open Letter’ was created, I think, sometime in 1995 – memory fails me here simply because it was over a decade ago! Since then, much to my happiness, people have adopted it, copied it, adapted it, and done all manner of things with it – both with and without my knowledge.
There are [...]
The Open Letter To Those Without CFS/Fibro …
Please go here to read information about the Open Letter and its cousins and translations, and also how to get your own copy printed on a poster.
Having CFS means many things change, and a lot of them are invisible. Unlike AIDS and Cancer, most people do not understand even a little about CFS and its [...]