This page started when I was trying to think of a way to explain to my family what it was like being sick. I moved out of home after I got sick, yes, but I’m a lot sicker now than I was when they saw me all the time. But feelings are so objective … so I decided that the best way to describe to them how I feel is to describe what I can do. I’m not sure any more that this is the best way – it requires one huge assumption, that I am doing the best I possibly can.
Like the rest of you, my day varies according to what I feel like doing, and it also varies a great deal according to how sick I am that day. These are my best attempts at a ‘typical’ day I would have around and near the given dates. To see some actual days, which often are quite different, check out Journeying/Journalling, my online journal.
Typical Days for Me
- December of 1996 (score on the Jill Moss Scale was not measured at the time, but was estimated afterwards to have been around 40-55%).
- June of 2000, whilst scoring around 25-30% in physical ability on the Jill Moss Scale.
- October of 2003, whilst scoring around 0-5% in physical ability on the Jill Moss Scale.
- April of 2004, whilst scoring around 0-5% in physical ability on the Jill Moss Scale.
Typical Days For Others
- Jodi Bassett, June, 2004, a great description of her "typical" days.
Like to add your own typical day description? Just leave a comment or contact me.
