Comments on: David Bell’s CFS Severity Scale http://notdoneliving.net/foothold/scales/david-bell Sun, 29 Jan 2012 01:11:24 +0000 hourly 1 http://wordpress.org/?v=3.1.2 By: tania http://notdoneliving.net/foothold/scales/david-bell/comment-page-1#comment-19612 tania Tue, 08 Nov 2011 23:35:58 +0000 http://notdoneliving.net/?p=599#comment-19612 All I can saw is some ME patients dont fit at all into the severity scales like this out there. My ME flares with activity and flares so severely and rapidly that I cant really do much activity at all. Im probably well below 30% with my physical activity level which would put me in that aspect as a 10 on that scale but I have NO SYMPTOMS usually at rest. Im so sick with the dysautonomia (POTS) part of the ME that Im unable to do enough exercise/activity to cause post exertional fatigue/malaise nowdays as I collapse and and go unconsious or into like a seizure on slight activity. My POTS activity level threshold is nowdays lower then my ME activity threshold (thou of cause the POTS is also part of my ME). With collapsing thou (which I do recover from fast as its POTS) but it leaves me with being unable to really over exert in the ME kind of way any more of then having the post exertional symptoms. So hence I wake up in the morning feeling okay and usually without symptoms which I wont get at all unless I try to do something then POTS stops me. I only get out of my house to do basic shopping and doctors appointments and need to have someone with me at all times when out due to the collapses. At home I basically rest all day, sitting with legs up. I can get away with staying out of bed during the day as long as I dont do physical stuff eg dont shower, dont get dressed and I just sit all day with legs up, dont cook all my meals, talking to someone face to face for 2 hrs is physical for me and can collapse me... As as i only do those things twice a week..Im not confined to bed. So where does one who can basically remain symptom free by doing hardly anything, fit on these scales???? ...... All I can saw is some ME patients dont fit at all into the severity scales like this out there. My ME flares with activity and flares so severely and rapidly that I cant really do much activity at all. Im probably well below 30% with my physical activity level which would put me in that aspect as a 10 on that scale but I have NO SYMPTOMS usually at rest.

Im so sick with the dysautonomia (POTS) part of the ME that Im unable to do enough exercise/activity to cause post exertional fatigue/malaise nowdays as I collapse and and go unconsious or into like a seizure on slight activity. My POTS activity level threshold is nowdays lower then my ME activity threshold (thou of cause the POTS is also part of my ME).

With collapsing thou (which I do recover from fast as its POTS) but it leaves me with being unable to really over exert in the ME kind of way any more of then having the post exertional symptoms. So hence I wake up in the morning feeling okay and usually without symptoms which I wont get at all unless I try to do something then POTS stops me.

I only get out of my house to do basic shopping and doctors appointments and need to have someone with me at all times when out due to the collapses. At home I basically rest all day, sitting with legs up.

I can get away with staying out of bed during the day as long as I dont do physical stuff eg dont shower, dont get dressed and I just sit all day with legs up, dont cook all my meals, talking to someone face to face for 2 hrs is physical for me and can collapse me… As as i only do those things twice a week..Im not confined to bed.

So where does one who can basically remain symptom free by doing hardly anything, fit on these scales????
……

]]> By: Managing the Quotidian | No Poster Girl http://notdoneliving.net/foothold/scales/david-bell/comment-page-1#comment-15941 Managing the Quotidian | No Poster Girl Mon, 08 Aug 2011 23:20:46 +0000 http://notdoneliving.net/?p=599#comment-15941 [...] various, more specific ways of describing the severity of ME/CFS. There’s David Bell’s CFS Severity Scale, A. Martin Lerner’s Energy Index Point Score, and the Karnofsky Performance Status Score. [...] [...] various, more specific ways of describing the severity of ME/CFS. There’s David Bell’s CFS Severity Scale, A. Martin Lerner’s Energy Index Point Score, and the Karnofsky Performance Status Score. [...]

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