Personal Experiences

Writing about Fibromyalgia/CFS experiences, contributions from myself and from others who are willing to share their stories with you ...

UPDATED Acronyms Galore - My fight with illness and disability - including Fibromyalgia and CFS.

Envying Stephen Hawking - A reflective piece by Jenn Vesperman, a friend of mine who also has CFS.

"But, Aren't You Paralysed?" - An innocent question with an unexpected answer

CFS and Exercise Experiences in a Rehabilitation Hospital - What happened the first time I went to Cedar Court Rehab Hospital.

Experiences in a rehab hospital: The Followup - A perspective from further down the track ... was it as good as it looked at first?

Functionality Levels for Ricky, 2003 - This document came out of Jenn and my discussion of ATP levels and how they related to the "real world".

Fishing Without A Hook - A story of living with no diagnosis. By Emma Corcoran.

How I felt while Watching The Paralympics, the 1996 games and now Watching The Paralympics II, the 2000 games.

Motivation And The SuperCrip - Jenn Vespermann's take on what's really motivational when you're chronically ill.

Crossing The Street - A tale of "pretending to be normal" for a while.

An Exercise In Helplessness - My feelings when the helpers don't turn up.

Fibro Poem - An untited poem about Fibromyagia. Written by Autumn Miller.

Describing Fibro/CFS - Descriptions of what it feels like that might help the "normals" to understand.

What would I do if I were well for a week?

Cause And Effect - Some of my thoughts about my illness.

Reunion - Another piece by Jenn Vespermann, thoughts about a high school reunion.

Holding Action - A metaphor of my body as a house in danger of being flooded.

I Wish I Could Dance - What is that feeling that hits when I see "the normals" doing their "normal" stuff sometimes?

Outside Resources

Some links to pages which are relavant but not stored on this site:

Journeying/Journalling - My ongoing journal.


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