Fibro/CFS/ME Foothold
Dealing With Doctors
This page comes from a post that Christa made to the CFS-20s mailing list. I have edited it slightly, and it’s used with permission. As far as doctor’s visits are concerned, you have to really know what you’re walking into. They want to diagnose, prescribe and cure. It’s not possible for this disease and many [...]
Attending School With Fibro/CFS
This page is being developed from a post to CFS-Y (a mailing list for youth with CFS/Fibromyalgia/etc.) that I wrote sometime in the 1990′s. I’ve adapted and expanded it into an article about things that I have used to help survive school whilst I had Fibromyalgia and CFS. Get a general letter from your doctor [...]
Communicating About CFS
CFS is often thought of as ‘All In Your Head’, and people with CFS thought to be ‘taking advantage of’ their illness to get attention from their friends and family. That CFS is not a psychological disorder has now been shown by a multitude of international-level medical studies on several continents, and even the American [...]
Coping with CFS
About a year after I got sick, I was given a book called ‘Coping with CFS’. It wasn’t a very good book, but I liked the title … most books about CFS seem to operate under the assumption that you can cure it in a few months ‘If You Do The Right Thing’, which of [...]
Dealing With Brainfog
Picture this It’s 3pm. I realize that I should have eaten lunch two hours ago and haven’t. I don’t feel hungry, but I go and get a glass of water, and wander over to the fridge. I stared at the fridge, unable to see – despite it having plenty of food in it – anything [...]
Grace And Grit
Sections in quotes are from ‘Grace and Grit‘, by Ken Wilbur. In April, my Mum recommended that I read this book … two days after that, somebody offered me a copy so I thought I probably should really read it. As you can see from the sections I have quoted, it’s quite a gem despite [...]
Fibro/CFS Activism
On The Radio In December, 2004, there was an hour long program on Background Briefing on Radio National (In Australia) discussing pain and the use of narcotic/opioid painkillers for pain. It included two patient profiles to illustrate what they were discussing – the patients were myself, and Moira Smith, who runs the only other large [...]
Outside Links
These are links to pages with information about CFS activism. As they say, two heards are better than one, so a whole internet full of heads much be much better than one! Personal Activism Links … A Personal Advocacy Postscript – by John Friedlich. From the A Few Words [About Activism] – by Matt Straznitskas. [...]
New Name For CFS Before 2001?
This article was written in May, 1999. “Chronic Fatigue Syndrome” is a terrible name for a disease. The name suggests that it is only fatigue and that it is all in the mind — wrong on all counts. The name also encourages people and authorities not to take this severely debilitating condition seriously, increasing the [...]
The Alchemy Of Illness
By Ricky Buchanan on July 22, 2009
The bits in quotes are from ‘The Alchemy of Illness‘, by Kat Duff. The commentary under some of the quotes in my own. Enjoy. Participate. Email me with your own quotes so I can add them! I find it very difficult to reconcile the contrary visions of health and illness, or even hold them both [...]
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