On The Radio
In December, 2004, there was an hour long program on Background Briefing on Radio National (In Australia) discussing pain and the use of narcotic/opioid painkillers for pain. It included two patient profiles to illustrate what they were discussing – the patients were myself, and Moira Smith, who runs the only other large Fibro/CFS website in Australia! The audio was online for several months, but lately has been removed from the site and there is now a transcript of the program available for those who are interested.
I am working on obtaining a copy of the audio in mp3 format so I can make it available (with permission) on this site also, but have not suceeded at this point.
Listen to yours truly on statewide radio in May 2002 talking about the major problems with our wheelchair taxis that refuse to turn up on time, if they come at all! (link is an mp3 file, approx 6 minutes of talking, 2.4mb)
Australian Working Group
In Australia in 1996, a working group has been set up by the government to produce guidelines for the diagnosis and management of CFS. These guidelines would theoretically be used by Medicare, the Department of Social Security and many other groups to dictate how CFS could be diagnosed and managed and turned out to be a total disaster despite many articulate submissions from the CFS Community in Australia.
I was asked to write “my story” to be included in one of the submissions to the committee. Although the report itself was very negative towards people with CFS, I am proud of the sumbission I made.
New Name For "CFS"?
During the time in 1999 when it seemed that a new name for "CFS" was imminent, I wrote this article about the idea.
Links
I made a page for links related to activism. It’s just new, but it’s growing slowly.
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