Activism

Fibro/CFS Activism

On The Radio In December, 2004, there was an hour long program on Background Briefing on Radio National (In Australia) discussing pain and the use of narcotic/opioid painkillers for pain. It included two patient profiles to illustrate what they were discussing – the patients were myself, and Moira Smith, who runs the only other large [...]

Outside Links

These are links to pages with information about CFS activism. As they say, two heards are better than one, so a whole internet full of heads much be much better than one! Personal Activism Links … A Personal Advocacy Postscript – by John Friedlich. From the A Few Words [About Activism] – by Matt Straznitskas. [...]

New Name For CFS Before 2001?

This article was written in May, 1999. “Chronic Fatigue Syndrome” is a terrible name for a disease. The name suggests that it is only fatigue and that it is all in the mind — wrong on all counts. The name also encourages people and authorities not to take this severely debilitating condition seriously, increasing the [...]

CFS Review Committee Submission

This piece was written in December, 1996. When I was little I wanted to be an industrial chemist because my Dad was. Then I decided to be a nuclear physicist because I was bored in class and it was the hardest job I had heard of. A little later, I discovered computers and the science [...]