Comments for Not Done Living http://notdoneliving.net Sun, 29 Jan 2012 01:11:24 +0000 hourly 1 http://wordpress.org/?v=3.1.2 Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Anne Medlin http://notdoneliving.net/openletter/id/comment-page-1#comment-22665 Anne Medlin Sun, 29 Jan 2012 01:11:24 +0000 http://notdoneliving.net/?p=22#comment-22665 yes sue this is true also,but in the end its us who put up with pain of trying to walk around shopping etc,pretending we are ok,its so odd how we feel embarrassed,maaybe we should just stop worrying about what otherss think,ive done that so long its another illness in itself,as when im not in my hometown i will relent and be pushed around to go shopping,yet home i suffer to walk,our pride ends up giving us much more pain,but we feel the stigma,even if ppl arent thinkin it we still think everyone does..because its Invisable,and we hide it so well to keep friends and ppl in our life,fearing they will get sick of us moaning or making anyone have to run after us.a true friend wont make us feel like thaat,stuff the whole rest of the world sue,its our life,its our truth and we must stop being ashamed.sent with much luv(and pain)to all the hiding super heroes here!! yes sue this is true also,but in the end its us who put up with pain of trying to walk around shopping etc,pretending we are ok,its so odd how we feel embarrassed,maaybe we should just stop worrying about what otherss think,ive done that so long its another illness in itself,as when im not in my hometown i will relent and be pushed around to go shopping,yet home i suffer to walk,our pride ends up giving us much more pain,but we feel the stigma,even if ppl arent thinkin it we still think everyone does..because its Invisable,and we hide it so well to keep friends and ppl in our life,fearing they will get sick of us moaning or making anyone have to run after us.a true friend wont make us feel like thaat,stuff the whole rest of the world sue,its our life,its our truth and we must stop being ashamed.sent with much luv(and pain)to all the hiding super heroes here!!

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Sue http://notdoneliving.net/openletter/id/comment-page-1#comment-22585 Sue Thu, 26 Jan 2012 21:20:42 +0000 http://notdoneliving.net/?p=22#comment-22585 "I’d almost rather have to be in a wheelchair. At least then people would believe that something is actually physically wrong with me and that I am not making it up". I can see your reasoning, but when you use a wheelchair they still don't believe you. They think you've given up, so in fact, you're subjected to a lot of prejudice and discrimination. “I’d almost rather have to be in a wheelchair. At least then people would believe that something is actually physically wrong with me and that I am not making it up”.

I can see your reasoning, but when you use a wheelchair they still don’t believe you. They think you’ve given up, so in fact, you’re subjected to a lot of prejudice and discrimination.

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by GeorgieLotte http://notdoneliving.net/openletter/id/comment-page-2#comment-21926 GeorgieLotte Fri, 06 Jan 2012 23:34:03 +0000 http://notdoneliving.net/?p=22#comment-21926 I have fibromyalgia and cfs I was and am absolutely made up to read this and have gladly shared the link on Twitter as I feel a lot of Ppl would also benefit from reading or sharing this with others. Thank you for wording it so perfectly :) I have fibromyalgia and cfs I was and am absolutely made up to read this and have gladly shared the link on Twitter as I feel a lot of Ppl would also benefit from reading or sharing this with others. Thank you for wording it so perfectly :)

]]> Comment on The Open Letter To Those Without CFS/Fibro … by supergnome eddie king http://notdoneliving.net/openletter/cfsfibro/comment-page-1#comment-21398 supergnome eddie king Tue, 27 Dec 2011 12:14:23 +0000 http://notdoneliving.net/?p=15#comment-21398 as somwone who is now involved with somwone with cfs as a helper understanding and doing help is very very top of the list i did not. my thoughts were get on with it try and as hard as this comes I WAS SO WRONG if my attitude can change any one can just do it as somwone who is now involved with somwone with cfs as a helper understanding and doing help is very very top of the list i did not. my thoughts were get on with it try and as hard as this comes I WAS SO WRONG if my attitude can change any one can just do it

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by John McCloud http://notdoneliving.net/openletter/id/comment-page-2#comment-21351 John McCloud Sun, 25 Dec 2011 23:17:51 +0000 http://notdoneliving.net/?p=22#comment-21351 Hi All I think that this letter at the start of this article is very good. I have many unseen illnesses, problems and complications in my body. I would prefer not to mention them as people may think of me differently. I could do without all the hurtful things that people say and do when they think your okay to look at. I look normal by todays standards. I can walk, talk, eat, drink and do many other things in my life but it will be painfully done as Im always suffering. I have had people say you dont look disabled to me and you dont look as if your in pain and a whole lot of other things which I will not say at this time but Im sure you can imagine. I dont think I will make it to an old age and my life is bleak to say the least but I dont let it get me down. Please Im not looking for support or sympathy or pity. I just want those people who judge with their eyes to stop and ask themselves what would they feel if they had disabilities and an illness that was not able to be seen, how would they feel about there friends, family and strangers saying cruel things and making accusations. Please dont be a hypocrite, if you are in doubt and before you put us down I would rather you take the time to get to know me and ask me what is wrong with me as opposed to make an assumption and be a hypocrite like the rest of the people out there. We are people at the end of the day and we have a heart. I dont know when Im going to die but I know it could be soon and Im only 44. How would you like to have that hanging over you. Its not nice is it. Neither is your hurtful remarks and accusations. So next time you go to judge someone rather than be a hypocrite, judge and executioner, say noting and just leave us all alone. Life is hard for us all with our problems, disabilities and illnesses without your hurtful remarks. Have a heart. PLEASE... Hi All I think that this letter at the start of this article is very good. I have many unseen illnesses, problems and complications in my body. I would prefer not to mention them as people may think of me differently. I could do without all the hurtful things that people say and do when they think your okay to look at. I look normal by todays standards. I can walk, talk, eat, drink and do many other things in my life but it will be painfully done as Im always suffering. I have had people say you dont look disabled to me and you dont look as if your in pain and a whole lot of other things which I will not say at this time but Im sure you can imagine. I dont think I will make it to an old age and my life is bleak to say the least but I dont let it get me down. Please Im not looking for support or sympathy or pity. I just want those people who judge with their eyes to stop and ask themselves what would they feel if they had disabilities and an illness that was not able to be seen, how would they feel about there friends, family and strangers saying cruel things and making accusations. Please dont be a hypocrite, if you are in doubt and before you put us down I would rather you take the time to get to know me and ask me what is wrong with me as opposed to make an assumption and be a hypocrite like the rest of the people out there. We are people at the end of the day and we have a heart. I dont know when Im going to die but I know it could be soon and Im only 44. How would you like to have that hanging over you. Its not nice is it. Neither is your hurtful remarks and accusations. So next time you go to judge someone rather than be a hypocrite, judge and executioner, say noting and just leave us all alone. Life is hard for us all with our problems, disabilities and illnesses without your hurtful remarks. Have a heart. PLEASE…

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Invisible Disability - Chronic Pain Illness http://notdoneliving.net/openletter/id/comment-page-2#comment-20730 Invisible Disability - Chronic Pain Illness Tue, 06 Dec 2011 17:09:53 +0000 http://notdoneliving.net/?p=22#comment-20730 [...] Open Letter To Those Without Invisible Disability Or Chronic Illness … by Ricky Buchanan is licensed under aCreative Commons Attribution-Noncommercial-Share Alike 2.5 Australia License. [...] [...] Open Letter To Those Without Invisible Disability Or Chronic Illness … by Ricky Buchanan is licensed under aCreative Commons Attribution-Noncommercial-Share Alike 2.5 Australia License. [...]

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Justin Murdock http://notdoneliving.net/openletter/id/comment-page-1#comment-20690 Justin Murdock Mon, 05 Dec 2011 13:01:33 +0000 http://notdoneliving.net/?p=22#comment-20690 RIP Kay Dekker, 15/9/1959 - 7/7/2011. Carried away by his medication, as he feared he might. RIP Kay Dekker, 15/9/1959 – 7/7/2011.

Carried away by his medication, as he feared he might.

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Someone Like Me « The Lupus Diaries http://notdoneliving.net/openletter/id/comment-page-2#comment-20268 Someone Like Me « The Lupus Diaries Tue, 22 Nov 2011 15:23:50 +0000 http://notdoneliving.net/?p=22#comment-20268 [...] http://notdoneliving.net/openletter/id [...] [...] http://notdoneliving.net/openletter/id [...]

]]> Comment on An Open Letter To Those Without Invisible Disability Or Chronic Illness … by Ann http://notdoneliving.net/openletter/id/comment-page-2#comment-19882 Ann Mon, 14 Nov 2011 13:43:00 +0000 http://notdoneliving.net/?p=22#comment-19882 This is so inspiring and Id love to mail this to EVERYONE I know! I actually just had one so called friends tell me I need to see a councilor! lol! As I shared my thoughts on the pain I'm going through that makes it hard to get out when I have the chance, but I can't because I'm having a bad day/night and its very depressing sometimes... that was so rude & unacceptable, especially since this person knows all I go through. Every one of us that suffer need to know who your true friends are Just when you think your right, you get that one comment, & all it takes is one... Like a councilor is going to solve my pain? been there, done that... so many times. Its like going back to P.T. when all they do is hurt you more. You can't get better by a round of 4 weeks of Physical Therapy. If you have an inured neck that hurts every day, with fibromyalgia, by pulling, stretching, turning our neck, we go home in worse pain than we had before!!! It don't get any better either! thank you my friend, Dolly, for sharing this with me :) I will ad to my others, its very iinspiring to pass on <3 This is so inspiring and Id love to mail this to EVERYONE I know! I actually just had one so called friends tell me I need to see a councilor! lol! As I shared my thoughts on the pain I’m going through that makes it hard to get out when I have the chance, but I can’t because I’m having a bad day/night and its very depressing sometimes… that was so rude & unacceptable, especially since this person knows all I go through.
Every one of us that suffer need to know who your true friends are Just when you think your right, you get that one comment, & all it takes is one… Like a councilor is going to solve my pain? been there, done that… so many times. Its like going back to P.T. when all they do is hurt you more. You can’t get better by a round of 4 weeks of Physical Therapy. If you have an inured neck that hurts every day, with fibromyalgia, by pulling, stretching, turning our neck, we go home in worse pain than we had before!!! It don’t get any better either! thank you my friend, Dolly, for sharing this with me :) I will ad to my others, its very iinspiring to pass on <3

]]> Comment on December, 1996 – A Typical Day by Typical Days With Fibro/CFS | Not Done Living http://notdoneliving.net/foothold/typical-days/day-199612/comment-page-1#comment-19746 Typical Days With Fibro/CFS | Not Done Living Fri, 11 Nov 2011 00:50:23 +0000 http://notdoneliving.net/?p=655#comment-19746 [...] December of 1996 (score on the Jill Moss Scale was not measured at the time, but was estimated afterwards to have been around 40-55%). [...] [...] December of 1996 (score on the Jill Moss Scale was not measured at the time, but was estimated afterwards to have been around 40-55%). [...]

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