2009

You are browsing the archive for 2009.

Getting Practical Help

Council Services Your local council probably provides home help and meals on wheels. These services are usually provided to the elderly but they are also available for the disabled and chronically ill. You will probably have to pay a token fee, usually less than $10 per hour, for the services. Home help will come regularly [...]

My powerchair was purchased by the VA&EP scheme for me.

The Victorian Aids & Equipment Program

Do you need rails to hold onto in the the shower? Would a wheelchair or scooter make your life easier? Do you need anything like this such as a shower stool or chair, or a keypad to open your door because you live alone and can’t get to it yourself? Is there anything else in [...]

Talking Books – A Useful Resource

What are talking books? They are fiction or non-fiction books – sometimes full-length and sometimes condensed or abridged – which have been narrated and the narration saved onto an audio tape, CD-ROM, or even directly onto a computer disk. There are three main sources for talking books: Your local library, and even your local bookshop, [...]

Typical Days With Fibro/CFS

This page started when I was trying to think of a way to explain to my family what it was like being sick. Like the rest of you, my day varies according to what I feel like doing, and it also varies a great deal according to how sick I am that day. These are my best attempts at a ‘typical’ day I would have around and near the given dates.

A Typical Day: Jodi Bassett

By Jodi Bassett, June 2004. Used With Permission. Please send comments or queries to: jodibassett@bigpond.com. I’m a 28 year old Australian woman and have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for almost ten years now. I have based this account on an actual day I had recently and although it’s a notoriously unstable illness, it’s an [...]

April, 2004 – A Typical Day

This page attempts to document the flow of a more-or-less typical day in my life as it is now, around April of 2004. Of course, there are never any days which are exactly typical and all that, but it’ll give you a good idea of my health and abilities at this time. Between 6am and [...]

October, 2003 – A Typical Day

A typical day in my life. Not that such a thing exists. Between 6am and 11am I wake up slowly, take my first lot of pills for the day (nine of them) and then I try to lie there quietly for as long as my bladder allows and just cuddle Thomas Cat, enjoy the new [...]

June, 2000 – A Typical Day

This is a (probably poor) approximation of a typical day in my life, as it is around the middle of the millenium year. 5:40am I woke up feeling extremely nauseaus, as per usual. Climbed out of bed and found some medications for it then back to bed. I tried to go back to sleep (something [...]

December, 1996 – A Typical Day

A typical day in my life. Ha ha. I wake up suddenly. The sort of waking up where you just know you won’t get back to sleep. It happens when I hear a noise, which might be a house-mate getting up to go to the loo, or just a truck going past – I sleep [...]

Introduction

If you need to know what Fibromyalgia (FMS, FM, Fibro) and Chronic Fatigue Syndrome (CFS, but not CF) are, you’ll find basic information on the website belonging to my local CFS/ME society which contains some information sheets with the basic details about Fibro/CFS on it. Pages like that – with basic information – are certainly [...]