July 2009
You are browsing the archive for July 2009.
Ten Commandments For Unwell Beings
This was originally sent to me as a document entitled “Ten Commandments For Wellbeing”, but, interestingly, I only had to change it a little bit to fit people with Fibro, CFS, and even other invisible disabilities. I guess we just all need the same things to be as well as possible! 1. Thou shalt not [...]
CFS And ‘Stress Allergy’
This piece was written by Jenn Vesperman in the form of an email to me. Used with permission. Dear? You are allergic to stress. Let’s see if I can explain. Everyone has a certain capacity for stress – a point at which they get irritable (or some other reaction), then a greater point at which [...]
Diary Of A Voice Amplifier
December, 2003 The words nearly jumped off the screen as I read them: The voice amplifier is a small portable aid that is worn on the body. It is useful for people who have quiet speech … Only outgoing breath, such as a whisper, is necessary to enable the voice amplifier to provide amplification. And [...]
CFS And Exercise: The Biochemical Reasons
From a message I sent to the CFS-20s mailing list in May, 1997. The quoted parts are Roger’s and have been used with permission. Please note that I am NOT a biochemist or a doctor or anybody else who’s qualified about this stuff! What’s written below is my understanding from what doctors and biochemists have [...]
CFS -> Osteoporosis?
If you’ve had CFS for a few years, but are still under fifty, osteoporosis is probably the last thing on your mind. After all, it’s not as if CFS doesn’t present enough problems on its own! But like it or not, you may need to give it some thought. My doctor sent me off for [...]
Doing Small Tasks More Efficiently
This article is not about saving energy with household chores, cooking, or shopping … it’s aimed at those small tasks that those with severe ME/CFS are still sometimes able to do. Things like banking, paying bills, buying supplements, shopping online, and so forth – they’re hard to delegate and for many people they’re impossibly difficult [...]
Useful “Needing” Words
The following phrases and questions may be of use when you are having trouble obtaining help from one of the disability services or care providers.
Why CFS Is Like Being Tied Up With Rubber Bands
Having CFS is like having every part of your body, and every sense and faculty – every single part of you – tied up with extra strong rubber bands. Nothing is quite like it used to be, and you can move a little but you never know when the rubber bands are going to PING right back and that hurts a lot.
CFS And Exercise
Exercise is a sore topic amongst many people with CFS – and understandably so, I’m sure that all of us have been told at least once that all we needed was to, “Get up out of bed and go for a good walk” and then we’d feel better! That exercise can be detrimental to people [...]
Couples: When One Partner Has CFS
This piece was written by Jenn Vesperman. Used with permission. A long-term, chronic illness changes your life. It also changes the lives of the people around you, and your relationship to them. A marriage where one partner has a chronic illness has a different dynamic from one of healthy partners, and that dynamic continues for [...]
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